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Autism is a spectrum

If you have seen one person with autism you have seen one person with autism. The abilities and strengths of individuals on the autistic spectrum vary considerably. This is why I have made every effort to not say anything or advertise it. Due to circumstances beyond my control I now have to wave a banner to advertise in the hope of encountering reasonable people because I am facing multiple traumatic events while just trying to survive.

Once you tell others you are on the spectrum they automatically place restrictions on you, or in my case they respond with “You don’t have autism. You speak well, you are intelligent, you look like everyone else. You speak just fine” I had to ask them “So, what does autism look like?”

Comments like “you speak well and you are intelligent” only goes to show the ignorance that people have. This is also why, people wrongly believe that my behaviour, actions, tonality of voice, and body language is a moral failure and/or character defect. I have spent a lifetime trying to correct moral failures and character defects all the while there is absolutely nothing I can do to change these traits. I can only find accommodation and learn strategies that help me function in a world and society rather hostile towards individuals on the autistic spectrum; hostile towards me and my very existence. I also have a personal stake in this because I have a niece and nephew who are on the Spectrum and I am so thankful they both received an early diagnosis. This means they are light years ahead of me but at the same time I am worried about the world they will encounter as they get older and have to learn to advocate for themselves. Perhaps they will find a world more accommodating.

Accommodation for people on the Spectrum will be different

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I shouldn’t have to hold out this banner but as long as I am walking around in public and using transit I will have to.

It is not safe for me to stand on the bus when the bus is in motion. I also shouldn’t have to move to a different seat because there is somebody demanding the seat I am currently using. I also should not have to endure half a bus yelling and screaming at me and calling me white trash, racist, and told to get off my own land because I am utilizing a seat I have every right to. I shouldn’t have had to say “Take a closer look at my Status Card. I am Native. I am Musqueam. This is MY land and YOU don’t have the right to tell ME to get off MY land” And for what? Because I require accommodation and have a right to the same accommodation as everyone else.

During this incident I had to physical defend myself. People using transit deserve to be able to ride transit and be safe from harm. Accommodation for disability is not a luxury. It is a right. The other day I asked if an able body person was willing to give up their seat. The passengers on the bus sat in deafening silence. I was about to walk off the bus when an Elder gave up her seat for me. I didn’t do what that other lady did. I didn’t make a scene. I made a request and I was willing to wait for the next available bus. So many able body people on that bus allowed an Elder to give me her seat. It’s enough to make you question.

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Journey Through Life Changing Trauma

On February 4, 2024 I was involved in a work related accident that was near fatal and life changing. This has presented in challenges that have made it especially difficult during my recovery. I experience Post Traumatic Stress Symptoms, Anxiety, and Depression. All of this has worsened and brought to light a heart condition I have which is LongQT Syndrome. LongQT Syndrome with Anxiety is considered a disability. I will experience significant challenges when it comes to returning to work. Work Safe has not only affirmed my case stating that I was not willfully negligent and that my injuries that are currently compensable or not in question so my employer who appealed Work Safe’s initial ruling was no successful. After a failed attempt at a return to work program my file was transferred to Vocational Rehabilitation and long term benefits. I have been assessed for a Pension but at this point I am not sure how much I will be awarded in that Pension. This assessment will take time.

Injuries from my accident

  • Fractured Larynx
  • 2 Right Rib Fractures (9th & 11th)
  • Pneumothorax (punctured lungs associated with fractured ribs)
  • Lacerated Spleen
  • Hemothorax (collection of blood within the body in association with the lacerated spleen)
  • Transverse Process fractures L1, L2, L4 (These fractures are tiny bones within the spinal column)
  • Comminuted Fracture upper Left Humerus bone (upper arm involving the shoulder joint requiring surgery)
  • Post Traumatic Stress

Journey through Writing

The best way people can support me is by being present. Sometimes I fight thoughts of being alone and all I need is human connection. You can’t put a price on human connection. Instead of being inundated with negative thoughts I would much rather focus on the positive. I would much rather speak to myself words of compassion, mercy, and be present to myself. In the process, through it I will write in my blog and share with you my journey. We could all use a little human connection and find encouragement.

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